Tuesday, January 9, 2018

We Have Lift-Off!

Have you ever cried at the doctor’s office, in front of a new doctor who doesn’t know you from Alice? I have. Yesterday. I didn’t ugly cry or sob, just tears. I apologized to him and explained that “no one has ever listened to me before.” Guess what he said! “I’m sorry that happened to you but we’re going to get this worked out.”

Yup, tears.

Let me back up a bit. Yesterday I had my first appointment with my new HCP, who happens to be 35 miles away. As I’ve said in previous posts, I’m tired of my concerns being ignored so I’ve changed doctors. I had planned to see a doctor who was suggested to me by someone in the DOC. I called last week and was so disappointed to find out that he is no longer taking new patients. Damn my luck! However, there is a nurse practitioner in his office who could see me. Yes, he could help me with my diabetes. I figured, what the heck, let’s give this a shot. I went armed with data and determination. I explained that I’ve been living with diabetes for over 12 years. I acknowledged that my A1c is still very stable but I had provided him with numbers, both fasting and pre/post prandial that I had gathered when preparing to see the dietician in November, that I hoped would explain my concerns. I said, “I know my A1c is good but I don’t think that fasting numbers in the 160s or post prandial numbers above 200 are a good thing.” You will never in a million years guess what he said to me. “You are absolutely right.” What? Really? (This is where I teared-up).

He told me that I had options, including more oral meds and Lantus. HE OFFERED ME INSULIN!!!!!!!!! Deep breath. I indicated that I didn’t want to take more oral stuff, but wanted something faster and more predictable. This is where he told me that he wasn’t used to seeing patients who actually asked for insulin. He said he has patients with A1cs of 10 and 11 who refuse insulin. That made me sad. He applauded me for realizing that things were progressing and wanting to jump on it before things got worse.

I cannot adequately explain to you how all this felt. My concerns were validated, a HCP listened and we came up with a plan together. I had fasting labs done this morning and I will return next Monday for a more thorough looking-over as well as instructions on how to poke myself with Lantus. Oh, and he has referred me to a CDE which is another thing I’ve never had…in 12+ years.

I feel more hopeful. I’m a bit worried about weight gain but the doctor said we’d keep an eye on that and adjust as needed. I’m concerned about the cost of the Lantus. (More on this and an insurance rant on the next post.) No matter the cost, it’s ok because I GET TO USE SOME INSULIN!!!!! I be happy, can you tell?


Oh, and please learn from my experience. Don’t EVER let a doctor tell you that your concerns aren’t valid. Don’t continue to see a doctor who won’t listen to you. Stand up. Speak up. Do whatever you need to do to get the healthcare you deserve. Please.

5 comments:

  1. Kate, this makes me almost as happy as it makes you! Glad you are finally being listened to. Also: Basaglar may be an option too. Good luck!

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  2. I always say unless a doctor laughs with me or even at me on the first visit, I start looking again. Always. And yes Good Luck !!!

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  3. Kate, Levemir is supposed to cause less weight gain than Lantus. But I never gained weight with any insulin. I think it's using huge doses of insulin to cover huge carby meals that causes weight gain.

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  4. Oh Kate! I’m so happy for you!!!!

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  5. Yay, Kate! This is great news! Be ready to ask questions on Monday. I wish you the very best!

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